Assessing Adolescent Involvement in Type 1 Diabetes Treatment: A Scoping Review of Person-Reported Outcome Instruments.

Abstract

<h4>Aim</h4>The aim of this study was to identify and map the content, structure, and application of person-reported outcome instruments used to assess the experience of treatment involvement among adolescents with type 1 diabetes.<h4>Methods</h4>Studies were identified in PubMed, Embase, CINAHL, PsycINFO, JSTOR, and MedNar. We included studies that used instruments that assess treatment involvement among adolescents (aged 11-18 years) with type 1 diabetes. All review steps involved two reviewers. Data extraction, charting, and analysis were guided by a template focusing on the content, structure, and application of instruments.<h4>Results</h4>This scoping review identified 23 instruments used in 52 studies, measuring different kinds of treatment involvement among adolescents with type 1 diabetes, e.g., communication with clinicians, clinicians' commitment, and shared decision-making. Both instrument length and response formats varied across instruments. Some instruments were applicable in adolescents, whereas others were suitable for use in adults.<h4>Conclusion</h4>This review details the use of several instruments assessing treatment involvement experiences among adolescents with type 1 diabetes. The findings of this review can guide clinicians and researchers on optimal instrument content, structure, and application to implement a person-centred care practice in paediatric diabetes care.